Archive for the ‘Children’ category

Treatment

March 15th, 2012

Always in good hands Parents don’t always want their children to carry on family traditions. Jason and Darlene knew that adrenoleukodystrophy (ALD) ran in their family because Darlene’s older sister had lost two sons to the disease. “When we found out that all three of our boys, Owen, Dylan and Jacob, had it, we were devastated,” [...]

Rare Disease

February 15th, 2012

Presenting a seminar she calls Prosthesis 101 to a class of elementary school kids is all in a day’s work for Laurie of Duluth, Minnesota. It’s just part of being Mariah’s mom – a bigger job than she expected when she took it on, but one Laurie wouldn’t trade for anything. The Beginning of a [...]