Rare Disease

Presenting a seminar she calls Prosthesis 101 to a class of elementary school kids is all in a day’s work for Laurie of Duluth, Minnesota. It’s just part of being Mariah’s mom – a bigger job than she expected when she took it on, but one Laurie wouldn’t trade for anything. The Beginning of a … Read more

Heartache Strikes Twice

Imagine facing the devastating diagnosis that your child has a rare condition that is fatal if left untreated….twice.  Parents Julie and Brandon faced twice the heartache when both of their children, Luke and Molly, were diagnosed with myelodysplastic syndrome (MDS). Luke was less than a year old when he developed a respiratory syncytial virus (RSV) … Read more