First in the world

When a 13-week-old baby has a stuffy nose and a mild fever, parents don’t usually panic. A simple trip to the doctor’s office, some antibiotics and lots of rest typically takes care of things. Baby Sydney, however, did not have a simple ear infection. Her high white blood count told another story—she had leukemia. Thus this … Read more

Treatment

Always in good hands Parents don’t always want their children to carry on family traditions. Jason and Darlene knew that adrenoleukodystrophy (ALD) ran in their family because Darlene’s older sister had lost two sons to the disease. “When we found out that all three of our boys, Owen, Dylan and Jacob, had it, we were devastated,” … Read more